How Our Neurologist want to Help

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Our Neurologists want to know each symptom we have that we just cannot tolerate and need treatment to control. For example if a person has no muscle strength in their legs and relies on spasticity or over-tone, to hold them up, they may not treat spasticity at all. Personally speaking I have that terrible burnt skin sensation on both legs. Sitting hurts like crazy. I do not want to treat this temporary pain with Gabapentin because the side effects of this medicine aren’t worth it to me.

Example of Intolerable symptoms that can be treated:  Fatigue * Insomnia * Spasticity * Depression * Foot drop * Incontinence * Pain * Sexual Impairments * Physical Therapy * MS Hug * Trigeminal Neuralgia

Only bring up the symptoms that you want help treating. Ask for a prescription for a trial dose and another prescription if it turns out you like it

​​ -Doctors want us to be prepared to ask questions about Disease Modifying Medications that we are interested in taking. If you go unprepared, you will be assigned a medication the doctor thinks is best. The worst thing we can do at a visit is ask the doctor to tell us our options. It takes up too much time and won’t make that appointment meaningful. Disease Modifying Medications ​

-Ask about Risk/Reward. All of these medications have side effect, so it is important to ask what the doctor’s plan is if you should have a really bad thing happen. Suppose you’re about to take Tysabri and are concerned about PML. Ask your doctor how to detect it and what his/her plan would be for managing it. A lot of scary medical situation can easily be reversed. We just have to know the plan first to we cannot fear the unknown.