MS Live is a show that is broadcasted on YouTube and Facebook every Tuesday and Thursday at 11 AM Eastern Time. If you have watched it, you know that it is highly interactive. Members help other members by answering the specific question based on their own experience. This advice should NEVER take the place of a doctor, but it sure is nice to know all the options for your next appointment. This is where we find our partners. We become invaluable to each in managing our disease and finding the total understanding and the supporate that only people with MS can offer.
MSFrontiers has 6 separate support groups to meet your personal needs. Each group is a closed group which requires you to request to join, answer a few question, then be added. We do this for the sake of your privacy as well as the safety and privacy of all members in the support group. Our first group to join is MS Frontiers Medical Support; https://www.facebook.com/groups/MSFrontiers/ - We this group to ask specific questions about medically managing our MS or provide others with suggestions based on our own experience. The advice you get here should NEVER take the place of your doctor. We use this information to talk with our doctors about appropriate treatment specifically safe for us. The next group that you'll want to join is MS Frontiers Personal Share; https://www.facebook.com/groups/MSFrontiersShare/ - We use this to share personal, emotional, and spiritual aspects of MS and receive support from fellow MSers. Please post your non-medical questions, suggestions, and helpful articles to encourage your peers living with MS. We have two groups that are geared towards a healthy life with MS. MS Frontiers Diet and Nutrition - https://www.facebook.com/groups/MSFrontiersDiet/and MS Frontiers Exercise and Rehab - https://www.facebook.com/groups/MSFrontiersEXR/Finally we have two exclusive groups only for people with advanced MS. Only those who have these two kinds of MS are allowed because things are shared that may never happen to the newly diagnosed and people with this advanced stage need support from others who have the same issues. MS Frontiers Secondary Progressive; https://www.facebook.com/groups/MSFrontiersSP/ - Only for those people who have had relapsing remitting MS previously and are now in the secondary phase of MS.MS Frontiers Primary Progressive; https://www.facebook.com/groups/MSFrontiersPP/ - Only for those who have been diagnosed with primary progressive MS which is characterized as never having had a remission. This is a very different disease path than relapsing remitting in that the disease course of PP is more gradual to the point of disability. Relapsing Remitting MS is characterized as having episodes (attacks) with remission and possible restoration between attacks. RR eventually can lead to SP in 10-20 years after onset.
If you want to help others with MS based on your own experiences with Multiple Sclerosis then please join.
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